Hope For Our Son
Striving Everyday for a Cure to Niemann-Pick Type C
My name is Osama Hamad. The meaning of my name is Lion which fits me perfectly because I am super strong fighter. My story begins when I was still in my mom’s belly. Mom & Dad were so excited to meet me and I knew that early on because they read and talked to me all the time! When I was only 24 weeks my family found out that my journey before I would come home would be a tough one because there was fluid around my belly. I could not wait to meet them and came WAY too early, at 32 weeks old on April 19th 2016, I made my debut. After I arrived, I knew there was trouble. So many doctors were around and helped me to breathe, eat and do everything that I didn’t know how to do yet. The doctors told my parents that I had an enlarged liver and spleen but they didn’t know why. I was in the hospital (NICU) for almost 2 months working on getting big and better. On June 13th, I was so happy to finally be away from machines and just spend time with all my family from near and far.
One of my first pictures after being born!
My "newborn" pictures after getting home from NICU at 2 months old.