FC6399E8-3C98-4F2A-9A1C-83E3EE9CA1BD.jpe

 Hope  For  Our Son

Striving Everyday for a Cure to Niemann-Pick Type C 

Osama's Story

Hi Everyone!

My name is Osama Hamad. The meaning of my name is Lion which fits me perfectly because I am super strong fighter. My story begins when I was still in my mom’s belly. Mom & Dad were so excited to meet me and I knew that early on because they read and talked to me all the time! When I was only 24 weeks my family found out that my journey before I would come home would be a tough one because there was  fluid around my belly. I could not wait to meet them and came WAY  too early, at  32 weeks old on April 19th 2016, I made my debut. After I arrived, I knew there was trouble. So many doctors were around and helped me to breathe, eat and do everything that I didn’t know how to do yet. The doctors told my parents that I had an enlarged liver and spleen but they didn’t know why. I was in the hospital (NICU) for almost 2 months working on getting big and better. On June 13th, I was so happy to finally be away from machines and just spend time with all my family from near and far. 

birth.jpg

One of my first pictures after being born!

newborn.jpeg

My "newborn" pictures after getting home from NICU at 2 months old. 

What is NPC? 

Niemann-Pick Type C often referred to as NPC is a rare genetic lysosomal storage disease. 

 

2021 Walk to Cure NPC

3186C290-C48B-45C1-B848-ECD8C4266E6A.jpe

What is the Ara Parseghian Medical Research Fund? Click for more information. 

We are so excited to announce our 2nd annual Walk to Cure NPC on October 9th, 2021

We can’t wait to see everyone!

Join our mailing list

Never miss an update

Name

Email